Menièreföreningen är medlem i I.M.F. (International Meniere Federation) som årligen utger en rapport där vi bidrar med vår verksamhet för det gångna året: 

THE MENIERE ASSOCIATION IN THE STOCKHOLM REGION, SWEDEN Stockholm 2006-07-08

As you can see above; there are hearths as a symbol for our work. We want to work with the hearth for joy and wellbeing for our members and ourselves.

The board is working to find new ideas and tries to create activities corresponding to the needs of our members. We know it is not easy to meet all the needs. It is sometimes difficult to get response from the members in the Association to the board. It is also difficult to co-operate with the professionals as they only see us as a patient group and are not asking for our experiences. This must change as we are the experts, and we have the knowledge of hospital treatment and personal knowledge of the decease.

We think we have succeeded in cooperating with the Karolinska University Hospital about treatment plans for people suffering from dizziness. This will lead to a focus report for Ménière and dizziness patients. It will include many big and difficult conclusions. The association has contributed with the perspective of the patient.

The on-going training of the members of the board gets much attention. We can always get better and learn more about how to do the best for our members and our selves.

During autumn some of the members of the board attended a course on leadership of study groups about Menière’s disease.

Our home page on the Internet is much visited. There you can share your experiences with other patients and ask questions and get answers about Menière’s disease.

This has been another year full of interesting events.

We are having the warmest summer in decades – enjoyable for some and bad for others of us having this decease. I think all of us waited for the long dark winter to end but the heath are making some to stay indoors.

* The board had five meetings.
* The annual meeting was held in February and Yvonne Olsen was re-elected chairman.
* A lecture about how to live with dizziness and balance problems was held by nurse/licentiate Barbro Mendel, Karolinska University Hospital
* A one-day conference for the board of the association was held in April.
* The spring closing was in May with an excursion.
* Teambuilding for the board was held in August and December.
* A lecture about tinnitus was held in October by physiotherapist Viveka Nyman
* The Autumn meeting was held in November
* The autumn activities ended in December with a smaller feast.
* Lectures and information were held during the year to the hospital rehabilitation groups and to the general public by members of the board.
* The Self-support-group met every second Tuesday giving support and information.

Sunny regards from Stockholm, Sweden

Chairman of the Menière Association of the county of Stockholm
yvonne.olsen@telia.com

Ombudsman
The Meniére Association in Stockholm region
Box 38 180, 100 64 Stockholm, Sweden
seija.bexar@hrf-sthlmsdistrikt.org